Okay, so it's not a picture from the conference but still: Boom and Banana! |
Before I get to telling you all
about the impressive swag that we acquired there (and it's worth waiting
for, I promise), we went to a keynote speech by Charles Sabine, a news reporter
turned Huntington's Disease advocate. His speech was, for lack of a better word,
outstanding and I’ve been thinking about it ever since. Mr.
Sabine's family has been ravaged by Huntington's Disease, a hereditary disease
that causes nerve cells within the brain to degenerate, resulting in
debilitating physical deterioration and dementia. It's a
terrible disease for which we currently have no preventative or curative
intervention. Mr. Sabine has watched his
father and uncle deteriorate and die from it, he is currently watching his
brother deteriorate rapidly and he himself will someday soon begin to
experience its symptoms and inexorable decline. It is an area in which
clinical research is much needed, hence why he was in Orlando talking to us.
If I related to you all of the
things that he said (which are continuing to resonate even now), we would be
here all day. I'll spare you and just throw out there that which struck
me as the most powerful: the complete uselessness of defining a
disease as incurable. (The following is essentially a
paraphrase of his speech this morning, a thing that I think he might be okay
with if only because it might make 18 more people in the world a little
bit more aware of this terrible disease.) Most illnesses and conditions that
affect us are incurable: the common cold, influenza, depression, chronic
cancers, heartbreak. We cannot cure
these things but rather, we’ve learned to ameliorate their effects, to minimize
the lasting impact that they have on our lives.
Beginning a person’s experience with this disease by telling them that
it is incurable does them a great disservice, it removes their hope. Hope is what pulls us through the darkness,
it what makes us look for something better and it’s what all research is built
upon.
It's just a thought. A thought that makes me proud of the very
small part I got to play in heme-malignancies research over the past five
years. Thanks Universe.
Now on to the swag!
ACRP swag 2013 |
That's a grand total of four bags, two t-shirts, three stuffed animals, two coffee mugs, two water bottles, a calculator, six pads of post-its, a medical dictionary, a calculator, three mini bottles of cetaphil body lotion, four pen sized hand sanitizer dispensers, three car iPhone charger, a desk iPhone holder, luggage handle, a ruler, a snap bracelet and five squeezy "work missile" balls. Impressive huh?
We also did some old-school Tebowing;
and even made some research-y friends:
So far as farewell tours go...it was pretty darn awesome. I love you Nurse Boom!
1 comment:
Love you Banana! I didn't realize you had posted this! That was indeed an awesome trip. The seemingly last of many. Here's to taking non-work trips after graduation!
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